WOW What a week

What started out as a normal week became a very busy and very long stay at CTCA. Let’s see … where to start.

Dr. B, my pulmonologist was scheduled for a follow up on my biopsy / paralyzed diaphragm. He was not able to make it so we had to meet with his partner who was fully up to speed on my case. You see, Dr. B was unable to make it because he was at his own follow up Dr appointment. Dr. B was hanging upside down in a door frame making a funny video and fell, dislocating his shoulder in the process. He is such a cut up and always keeps us laughing so this is not hard for us to visualize. I love Dr. B. After finding out I was a fellow Mason, before surgery he hugged my neck and rubbed my head and told me he was going to take good care of me.

The paralyzed diaphragm (left side only) was nerve related. We just have to wait it out to see if in time will heal. Otherwise, my body can learn to compensate and adapt. Or if the symptoms become more problematic there are other options. Secondly, he wants to do a swallowing test next week. They will put me in front of an x-ray movie machine and have me swallow difference consistencies fluids and solids. This is to rule out silent aspiration (food/liquid entering lungs) due to my issues. Physical Therapy showed me several exercises to force transfer of air in that left lung to keep the air moving and reduce the possibility of developing pneumonia.

We were able to move my plastic surgeons follow up from next Monday to Wednesday afternoon to save ourselves a trip down next Monday just to meet with him. He is glad I’m off of Erbitux and hopes that things begin to heal in neck (fistula). Wound Care Specialist, Beth, is very encouraged in the progress that is being made on my donor site on my leg. She said that some may be a raised scar but at least it is healing, since the Erbitux is out.

Also, my endocrinologist asked to move her appointment from next Friday to this Friday. This added another day to stay. My thyroid meds were working but did not have my TSH at the optimum number. With the thyroid, if you are going to medicate you might as well shoot for optimum.

Staying the extra night turned out to be a “God’s timing” thing. This AM at 5:00 I woke up to use the restroom. My urine was darkly blood stained. As the morning progress it lightened up but still has a tinge of blood even now. This could be a side effect of my chemo, which is less likely since I did not respond this way the first (3) times I have had this particular mixture of chemo drugs. On the other hand, Lori had noticed on a PET scan write up that the reader noticed several 3-4 mm stones in my left kidney. My Quality of Life doctor, Dr. C, is leaning toward the stones either irritating my kidney of bladder, or possibly I had passed on and it had aggravated me on it’s way out. Either why, we are waiting to see. Any change and we will take it to a doctor here or back to Quality of Life next Wednesday.

We met some very nice people this week. First of all, Jonathan and Linda U. from AL. Jonathan is fighting cancer on his lung. Jonathan has a great God story that I will add in another post. Secondly, Teena and her husband from NC. Teena has been fighting kidney cancer for 5 years.

I am reading “The Shack” by Wm. Paul Young. I know this book created quite a stir when it came out but I really enjoy it. It’s the 3rd or 4th time I’ve read it and I enjoy how it takes some extremely complex theological issues and simplifies them inside a gripping story. In Romans 8:28-30 Paul throws put some serious meat. No milk here. 28 And we know that for those who love God all things work together for good, for those who are called according to his purpose. 29 For those whom he foreknew he also predestined to be conformed to the image of his Son, in order that he might be the firstborn among many brothers. 30 And those whom he predestined he also called, and those whom he called he also justified, and those whom he justified he also glorified. (Romans 8:28-30 ESV) In “The Shack”, Young takes on this topic especially how we are to be conformed to the image of His son. The only way we have any hope of approaching this seemingly impossible task is that out of love for us Jesus made himself, choose moment-by-moment to live fully human. cross2He led a human life fully surrendered into the hands of God. Fully in relationship with God and fully in touch with the power of God. The miracles performed by Jesus were al by the power of God, after prayer, even though Jesus could have simply willed the miracle to happen. We are after all talking about the Word. 1 In the beginning was the Word, and the Word was with God, and the Word was God. 2 He was in the beginning with God. 3 All things were made through him, and without him was not any thing made that was made. 4 In him was life, and the life was the light of men. 5The light shines in the darkness, and the darkness has not overcome it. (John 1:1-5 ESV) Why would he have to rely on God to provide the power for the miracles He performed while He walked the earth? Out of undying love for you and me. That is the only way we could ever “conform to the image of His Son.”

That is a powerful love and gives us a lot to live up to. I am glad that love is God’s character and that is what we have to shoot for. As for me, I’m really trying to learn to love everyone, even those who have hurt me. Not saying I can or will forgive/forget but love can transcend.

Love to all my family, friends, prayer warriors, church family, and those that are in similar situations in their faith walk and physical walk. Please pray especially for my left lung, unknown source of my bleeding, Teena, Jonathan, Gene J. – Mr. Alabama (who should be starting his treatments next week, based on what I have heard), And especially Mara. Pray that she will see that the pain now is nothing if such a sickening revelation had come after her wedding. This was God’s timing to save her from more pain down the road.



P.S. (3) Detroit Red Wings over (2) Carolina Hurricane in overtime. Great game. So glad hockey is back. New goalie rules might make this season interesting when it comes to scoring.



2 thoughts on “WOW What a week

  1. glad you’re reading (read) the shack- awesome book and author. I continue to pray for you and your CTCA family. I love you, Lori and the kids-

  2. Alan

    Thank you so very much for doing the Web Site. I feel like we can be much closer to you by having the additional info. Hope things go well today and tomorrow and tomorrow.

    Love ya

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